A slow, easy start.

No rush, no urgency, just letting the morning unfold as it wants to.

The kind of quiet that only seems to land properly on a Saturday.

I’m looking ahead to the week, not in a big overwhelming way, just small pieces.

House things. Hospital things.

Food, clothing, the usual organising that keeps everything moving.

Bits and pieces that don’t look like much on their own but somehow make up the whole structure of the days.

The work is constant.

Never done. Never done. Never done.

It loops in the background, part of life now.

But this morning, I’m not fighting it. Just letting it sit there while I take things slowly.

There’s something steady about easing into the day like this.

No pressure to fix everything at once. Just one thing, then another, when I’m ready.

For now, it’s Saturday.

And that’s enough.

Preparing for a return to work on Monday and have requested a flexible schedule to help manage school transport.

Planning to take the kids swimming later, picking up my granddaughter’s best friend and her brother as well, will be a fun outing.

I have also sent off an advocacy email providing feedback on our experience with mental health services, something that I felt needed to be done.

Hoping new medication starts today.

First stop is an eye appointment with my granddaughter.

It has been good to get important things sorted over the past few weeks.

Heading into the next few days feeling more organised and cautiously positive about what is ahead.

I went out to check the second lot of peas this morning, the ones I covered properly this time.

Not one left.

No snail trails, no scraps.

Just gone.

Birds, most likely. It’s frustrating doing everything right and still ending up with nothing.

Feels like a bit of a theme at the moment.

Hospital is back in our day again, threading through everything.

You don’t separate it out, you just work around it.

At the same time, I’m trying to keep things normal for the kids.

My granddaughter has a friend over today, and tomorrow I’m taking a couple of them swimming. Simple things, but they matter.

In between, I’m thinking about next week , school, work, what comes next.

Always that balance between now and what’s ahead.

I keep coming back to this: the system isn’t built for people who can’t advocate for themselves.

If no one’s there to push, follow up, and notice what’s missing, to advocate with a loud voice, then things fall through, I see a world where people are just ticking a box to the detriment of the patient.

Then you look at an empty garden bed… and start again.

Six days, no food.

Conversations with doctors last time saying she wouldn’t be admitted again, that the appropriate medication would be sorted.

Promises, then nothing.

So here we are, going back to ER again today.

Yesterday, though, I stayed home. Worked in the garden.

It’s not perfect, but it’s better than it was.

I got through the tasks that needed doing, and for a moment there was a real sense of accomplishment.

Holding onto that, even as everything else pulls me back.

No sleep last night.

Just me, my phone, a bit of Netflix, and a head that wouldn’t switch off.

One thing after another, work next week, kids going back to school, an unwell child, everything lining up at once.

Morning still comes though.

So today’s not about being amazing. It’s about getting through what needs to get done, kids sorted, bits around the house, following through on plans I made when I had more energy.

Trying to be normal.

Trying to keep things steady.

Running on empty, but still moving.

That’s enough for today.

Today was one of those simple but productive days.

We were up early for dental and doctor’s appointments, ticking off the things that need to get done. Spent some time at home getting on top of jobs, then went for a bit of a drive and had a look through a few op shops, looking for a good blanket for the dog 🐕

Came home, cooked dinner, and called it a day.

Nothing fancy, just getting organised, getting things sorted, and getting ready for next week with work starting again and school going back.

Sometimes those steady, practical days are exactly what’s needed.

Another week of leave ahead.

Joy, peace, and proper rest.

Had a crack at leveling the pavers not my finest work, but a little bit better than before.

Now I’ve got mounds of dirt everywhere and no real plan for it yet… but that can wait.

No rushing, no pressure.

A bit of pottering, a bit of TV, something to eat, and maybe an afternoon nap thrown in for good measure.

This week isn’t about doing everything… it’s about doing enough, slowly, and being okay with that.

A cold, windy autumn day.

The kind that gets into your bones and makes everything feel a bit harder than it should.

Yesterday I dug up a heap of dirt, a job that turned into many and now it’s sitting, waiting.

Like everything else.

There’s always something around the house.

You clear one thing, and three more appear.

It never really ends.

And in the middle of that, still waiting.

Discharged, but not better.

Just more waiting.

For results.

For the right medication.

For someone to properly connect the dots.

It’s an in-between space.

Not fixed. Not resolved. Just sitting in it.

So today isn’t about getting everything done.

Maybe it’s just about containing it.

Move the dirt into a pile.

Make it manageable.

Then step away.

Go for a drive.

Find somewhere to walk.

Let the cold air hit and clear the head for a bit.

The jobs will still be there.

But maybe I won’t feel so stuck in them.

One week left of the holidays, I can feel the shift.

Today’s cooler.

Slower.

Time to get out into the yard and actually deal with it, dig up the dirt, level it off, and lay the pavers flat so everything looks neat and settled.

There are appointments, as always, but they don’t feel overwhelming today, they fit around the day instead of taking it over.

A slow day.

A steady day.

Breathing space, and a chance to quietly get things done.

Much better.

Excited for the kids being excited over their collectible cards.

Sorting stuff out, bit by bit.

Nice being outside too, sunshine and that wind going through, just feels good.

House work, normal work, glad to not be at work.

Ticking off the list of things needing to be done, the important things you don’t get time for when you work full-time.

Heartbreaking looking at my daughter, been in hospital for I don’t even know how many days now, just looking more and more frail.

Still need to polish the car… and I really need to plant the peas again (and actually cover them this time so the birds don’t get them.

Cleaning, de cluttering, proper clean-out.

All the rubbish, all the stuff you just never throw out often enough… just get rid of it.

Feels good once you actually start.

Somewhere in between that, I need to get my licence photo, a flu shot.

Then all the life admin… dentist, doctor, appointments for everyone.

And in the middle of it all, waiting on the hospital.

Waiting for them to do the right tests so we can get the right medication sorted.

Feels like we’re all just sitting in suspension, stuck waiting for things to move.

Today’s kind of day… pulling rooms apart, clearing out rubbish, finally getting to all the things that never seem to fit into normal life.

Soft drizzle outside, that quiet grey that makes everything feel slower and somehow better.

No urgency this morning, just space to wake up properly.

Planted three tubs of peas… and they’re all gone.

Birds got them.

Didn’t even think to cover them, lesson learnt, I’ll try again.

Hospital visits, two houses, three dogs, two cats, a school of fish to juggle, cleaning, cooking… but no rush.

Just moving through it all, one thing at a time.

Yesterday was for Easter, slow, warm, and full of little moments, so the clocks didn’t get touched and neither did much else.

And honestly, that felt right.

Today is different. Today’s the reset.

Clocks need changing, the house needs a proper clean, animals need sorting, and there’s always something to build or fix.

Life doesn’t pause, even after a good day.

So today is about getting things back in order.

A bit of mucking around, a bit of responsibility, and just getting on with it.

Real life, after a really lovely day 💛

Easter magic this morning……,we woke up to find the Easter Bunny had been 🐰🍫

The excitement never fades.

With petrol prices the way they are, the free train made the decision easy, so we headed into the city for the day.

It was busy, lots of people out enjoying the sunshine and such a nice, warm day.

We had lunch at a pizza place, then spent time wandering around the shops looking for Pokémon and Dragon Ball Z cards.

That was definitely a highlight.

We also picked up a dozen of our favourite little cheesecake tarts simple things, but so good.

After a day in the city, we caught the train back home and are now heading up to the hospital for a visit.

A really lovely day, busy, warm, and full of those small, meaningful moments 💛

Happy days, happy days.

The Easter Bunny comes tonight.

And I am genuinely happy about that, because the kids deserve that magic.

So yes, let’s make it a nice day for the children. Let them have the excitement, the chocolate, the joy.

And on a good note , my eldest granddaughter is home. A little tiff with her mum, now sorted.

That’s happy news, and I’m holding onto that.

But this morning, after taking my daughter to emergency last night and watching her have a nasogastric tube put in, I have already had to speak to the hospital manager this morning.

This is the tenth admission.

Holding all of this at once is a lot ….trying to protect something light for the kids, while dealing with something that feels so heavy behind the scenes.

Because this shouldn’t keep happening.

Mental health says one thing. Medical says another.

No coordination. No continuity.

Just the same revolving door, over and over again.

And yes, my anger gets the better of me sometimes.

But it’s because I have to keep repeating myself, the same history, the same reality, to services that still aren’t properly working together.

Don’t they know how to use AI and summarise.

If I don’t push, nothing changes.

And that’s what really sits with me.

Because not everyone has someone who can advocate like this.

Not everyone can keep fighting when they’re already exhausted.

Care shouldn’t depend on who speaks the loudest.

It should just work.

So today, I will make it a good day for the children.

I will hold onto the small wins.

I will take the happy where I can.

But something has to change because this cycle isn’t care.

Happy Easter.

Even here. Even now. 🐣✨

Four years single today.

Best thing that ever happened.

Now?

No noise.

No criticism.

No walking on eggshells.

Just peace, real peace.

And the longer it goes, the better it gets.

You stop settling, stop explaining yourself, stop needing anyone else to feel okay.

Then there’s real life.

Back to the hospital again today, hearing the same line….three minutes without air, three days without water, three weeks without food.

That works on paper.

Not when it’s your child.

You don’t count weeks. You watch every hour.

But even with that, my peace is still mine.

It keeps me steady, keeps me thinking straight, keeps me showing up.

Good Friday means something additional to me now every year.

It’s a very Good Friday!

18 days leave, nothing big planned. Just staying home, breathing, slowing down.

Life still moving though.

Eldest grandson with a knee the size of a balloon after crashing his bike.

Eldest granddaughter with me for now, while things settle.

In between all that, made an Easter bonnet with the youngest.

Sat at school listening to “Hot cross buns, one a penny, two a penny”, waiting for the parade.

Funny how the simplest moments end up meaning the most.

A mix of chaos, care, and really good memories.

What an interesting day.

Last day of work, busy tying up loose ends before a couple of weeks’ leave.

Yesterday’s doctor’s appointment brought something new: finally, a proper plan after almost two years.

Then my eldest granddaughter called for a lift. Dinner turned into back-and-forth trips after a fight with her mum and back to her friends.

Not the day I expected, but definitely an interesting one.

Today, I will leave work again.

Again with that same explanation, the same look, the same quiet calculation of how much more time I can take before it starts to matter.

Third specialist appointment.

You would think by now there would be movement, a decision.

Something concrete.

A plan.

A shift.

But instead, it feels like standing still while everything that actually matters is moving in the wrong direction.

There’s something deeply wrong with a system that schedules alleged important appointments for a parent at school pickup time and calls it care.

As if life pauses neatly around their calendar.

As if children don’t need collecting, work doesn’t exist, and families aren’t already stretched past capacity.

So the kids stay home.

Again.

And I sit here wondering, will this just be another conversation?

We will have to tag team today as they want her in by herself for the first half , it is only me her and the kids.

Another “let’s monitor”?

Another version of nothing dressed up as something?

Because from where I’m standing, this isn’t abstract.

This isn’t theoretical.

This is watching your child fade in real time.

Slowly.

Relentlessly.

In ways that don’t fit neatly into appointment slots or polite clinical language.

And somehow, I’m expected to sit calmly in a chair and wait for consensus.

I’ve thought about calling triage this morning.

But what for?

To be told to go to the hospital?

To start another process?

To explain it all again to someone new?

Everything feels like a loop.

A system built on delay, repetition, and passing responsibility just enough to keep things moving, but not enough to actually change anything.

What I want, what any parent would want, is simple.

Not reassurance.

Not more discussion.

Action.

A line in the sand that says: this is serious, and we’re going to treat it that way.

So today, I will go again.

Not hopeful.

Not defeated.

Just done with pretending that this level of care is enough.

If nothing else, today has to move.

As always I have to be the one to force it.

Long. Tedious.

One of those days where you’re just watching the clock, counting it down hour by hour.

Two more days and then a break.

But underneath it all was this constant uncomfortable feeling. Nothing specific, just sitting there all day, like something not quite right that wouldn’t shift.

Dinner with the kids is never enjoyable for any of us while illness and starvation sits at the table .

And I’m just… exhausted.

Not just tired, but that deeper kind the kind that sits in your bones. The kind that doesn’t go away with a good sleep.

Carrying it all, watching it all, holding it together.

Two more days.

Up at 5:30 this morning.

No rush to move, just lying there for a bit, easing into the day, scrolling and letting the quiet settle around me.

A birthday party on today for my granddaughter’s friend, one of those simple, sweet lunchtime gatherings at a play centre.

Yesterday was all about preparation.

Getting things lined up for Easter next weekend, thinking ahead, organising what needs to be done so it doesn’t all land at once. That quiet kind of productivity that doesn’t look like much, but sets everything up.

My daughter is still sick.

That sits in the background of everything at the moment.

We are waiting for Tuesday, an appointment for a second opinion on her medication plan.

It is a holding pattern until then.

Let’s see how that goes.

I wake up to rain, not the heavy, miserable kind, but a soft, steady fall.

The kind that feels refreshing. Cleansing.

Like the world is quietly rinsing itself clean.

I pick up my phone and start scrolling. Just a quick look, I tell myself. But the longer I stay there, the heavier it feels. Everything looks like it’s shifting, like the world is tilting in ways that are hard to understand.

It’s unsettling.

And yet… most of us just keep going.

We make coffee.

We fold washing.

We answer emails.

We live inside the small, immediate day in front of us.

It makes me wonder, is the world actually changing that much?

Or has it always been like this, and now it’s just delivered straight to us, all at once, before we’ve even had a chance to wake up properly?

It’s Saturday.

I have work I could do.

Things waiting on that computer. But the thought of turning it on again feels like giving the day away. Like trading something quiet and real for something that can wait.

There’s cleaning to do too, always is. But I don’t want to spend today chasing tasks either. I don’t want to look back and feel like I used up a perfectly good day on things that don’t really matter.

So here I am, sitting in the in-between.

Not wanting to work. Not wanting to clean. Not quite sure what the right choice is.

Maybe there isn’t one.

Maybe the answer is simpler than I’m making it, just get up, have a shower, and let the day unfold from there.

See where it goes.

Let the rain do its thing.

Done with the work week.

Ran straight to Pilates.

Body showed up, but energy didn’t quite follow.

One of those sessions where you’re there, you’re moving, but you know you’re running on empty.

Still counts though.

It always counts.

Too tired tonight to really wind down properly.

No big rituals, no long exhale just that quiet, heavy feeling of a week that’s taken what it needed.

But there’s something sitting just ahead.

One more week… and then Easter. Two weeks of leave.

A pause.

A chance to stop running on the edge of tired and actually rest in it.

For now, it’s enough to just be here at the end of the week.

Showing up, even when you’re exhausted.

It is its own kind of strength.

Every human on this planet lives with uncertainty.

No one is promised tomorrow.

We plan, hope, and assume… but we don’t actually know what’s coming next.

Certainty isn’t real. It’s a feeling.

Humans have always known this. Long before everything was mapped out, tracked, and explained, people still woke up not knowing what the day would bring.

It’s not a modern problem.

What changes isn’t uncertainty, it’s how much we feel it.

Some people move through life without noticing it.

Others feel it in everything.

But neither group is more certain than the other.

Uncertainty isn’t something that’s gone wrong.

It is life.

The goal is not to eliminate it.

It is to live well inside it, to notice the right now, and keep showing up. ✨

Somewhere in the night, I had a dream that felt incredibly real.

A young love, who hasn’t been here for years.

Funny how the mind works… he kissed me, and I could still remember it when I woke up.

Sat on the step with a coffee in hand, looking up at the sky.

Clear, vast, full of stars constellations scattered across it, the Milky Way stretching quietly overhead.

The kind of moment that makes everything feel both small and significant at the same time.

It’s an office day today, so the calm comes early.

Before emails, before conversations, before the pace picks up.

Life can be very beautiful.

And it can also be very hard.

Both exist at once

yin and yang,

black and white,

night and day.

And maybe the balance isn’t something we find…

maybe it’s something we notice, in moments like this.

I am on hold to triage again this morning.

It’s become routine in a way I never expected, not because it’s easy, but because it’s necessary.

You learn quickly that if you want something heard, it has to be recorded somewhere that matters.

I used to call the team directly.

That felt like the right way, go through the proper channels, trust the process.

But over time, you start to notice what actually works and what doesn’t.

There are steps.

Over time, you learn which ones actually move things forward.

So now, I call the hospital.

Not because I want to make a bigger deal of things, but because it already is a big deal.

Because blackouts aren’t something you leave sitting in a voicemail that may or may not be passed on. Because if I have to advocate, then I will do it properly, in a place where it’s logged, where it exists, where it can be acted on.

And while I wait on hold, I pull weeds.

There’s something steady about it. Simple. Honest.

You see what needs to go, and you deal with it.

No barriers, no gatekeepers.

Not everything is complicated. Some things, you can still pull out by the root.

The fence has taken a hit overnight possums doing what possums do and one of the tops is loose.

It’s the kind of thing that would usually sit in the back of my mind until it’s fixed.

Today, it can wait.

Some things can wait.

What can’t wait is being heard. What can’t wait is making sure that when something is wrong, it’s acknowledged somewhere that counts.

So I stay on hold.

I keep pulling weeds.

I follow the steps that actually lead somewhere.

And maybe that’s the quiet strength in all of this, not just enduring it, but learning how to move through it differently. Learning which doors open, and which ones don’t.

And choosing, every time now, the path that actually leads somewhere.

We went for a drive in the warm sun, chasing sea glass.

It turns out we picked the wrong time, the tide wasn’t in our favour. There were only tiny little pieces here and there, nothing like what we’d hoped for.

One of those quiet reminders that some things can’t be rushed… you just have to meet them at the right moment.

But the drive itself was beautiful. Windows down, warmth on my skin, nowhere urgent to be.

And in that space, my mind wandered.

I thought about something Khalil Gibran once wrote:

“Between what is said and not meant, and what is meant and not said, most of love is lost.”

And it stayed with me.

How much of life comes down to that…….the things we don’t say, the words we hold back, the conversations that never quite happen the way they should.

Sometimes I find myself wondering where things went wrong. Replaying moments, questioning if something could have been different.

But the past doesn’t change.

It is what it is.

What lingers more is the silence. The distance.

The things left unsaid.

And the hardest part is how it ripples outward, touching the ones you love most.

That quiet sadness you can’t quite fix, no matter how much you wish you could.

Maybe it’s a bit like the sea glass.

Shaped over time, carried by forces you can’t control, and only visible when the conditions are just right.

We’ll go back again, at the right tide next time.

And maybe, in life too, there are still moments where what’s been lost, or hidden, finds its way back to the surface.

Until then, all you can do is stay open.

Say what matters when you can, and move forward gently.

Big plans yesterday.

I was going to go take us all for a drive, get out, for a change of scenery.

Instead, I came home… and stayed.

Probably a smarter thing to do anyway as petrol is skyrocketing.

I spent the day in the yard, getting through all those little jobs that had been waiting.

Nothing big, mowed the yard, watered my plants, washed the car, by the end of it, everything looked fresher.

The grass is greener now, slowly changing with the cooler days.

There’s something grounding about being in your own space, taking care of it.

Nice to just be home, no rushing, no plans, just a simple day.

And that is enough. ✨

My cat seemed happy for company, following me around rather than seeing me in and out for two minutes.

And today, a small step back into routine.

Pilates for the first time in a couple of weeks. (I’m the only one in the class that taps out lol.)

Sitting in the morning sun in my yard with the cat and the dog.

I feel like the luckiest person alive.

Nothing dramatic.

Small moments of peace.

Grateful for the privilege.

Had a sleep in this morning……actual luxury.

No alarm, no rushing.

My daughter was discharged yesterday, so we’re back in the “wait for the next admission” loop.

Yes, the house needs cleaning.

Yes, the garden is quietly judging me.

But I’m calling it, this is a partial self-care weekend.

Pedicure? Highly likely.

Random drive? Also likely.

Ending up somewhere new with no plan?

Even better.

Cleaning can wait until tomorrow.

Because not everything has to be sorted all at once.

Sometimes you just need a change of scenery, a bit of fresh air, and a reset where you can.

And that’s enough today.

Happy Saturday ✨

There’s a definite shift in the air now.

The mornings are colder, the kind that make you hesitate before getting out of bed, and the days aren’t carrying that same heat they were just weeks ago.

You can feel the season turning, even if it’s subtle.

Good Friday is only two weeks away, and with it comes the school holidays.

I’ve already decided I’m taking the full two weeks off.

No juggling, no trying to be everywhere at once, no stretching myself thin.

Just time to breathe, to be present, and to let things settle a little.

Fridays have always been my favourite workday.

There’s something about them, quiet sense of wrapping things up, of knowing there’s a pause just ahead.

Today feels like that, but more than usual.

Like I’m already stepping into that break, even if it’s still a couple of weeks away.

Sometimes you don’t realise how much you need a stop until you can see one coming.